The following is an actual account of a fairly normal Monday at our house. Enjoy!
3:10am Ry wakes me up to get him something to drink
4:08am Ry wakes me up for more drink
5:13am More drink and a pull up change
6:03am More drink
7:15am I’m awake for the day and Ry wants to dance to the music from one of the apps on his kindle – the interactive story book Just Helping My Dad by Mercer Mayer.
7:30am Post todays article on the webpage. Ry is playing on the piano in the living room.
7:45am Bathe Ry and get him ready for school
8:07am The school bus picks Ry up and I give Aidan a ride to the Toyota dealership to pick up his truck. He had the key fob replaced on Saturday and was unable to pick it up that afternoon/evening because he was playing in the band at a basketball game on campus. The dealership service department was closed on Sunday.
9:04am I lay down for a quick nap before doing any more for the day.
9:17am Get a text message from Ry’s teacher asking about his cup. I forgot to put one in his bookbag this morning. Dang it! Remembered the pull ups and his IEP invitation response, but no cup. Text back but get no response.
9:30am Try again to take that nap. Keep singing ‘Sawed Off Shotgun’ by Glorious Sons in my head. Not helping the nap bit.
10:30am Hit snooze on my alarm.
10:33am Paix comes in and tells me that I need to get up and get busy. She’s awake before 12n so I should be too.
10:40am Pick up Den and start cleaning Ry’s room to include changing his sheets. They stink. Start laundry.
11:30am Off to run an errand for Eric – actually Eric’s boss, but same same.
12:30pm Lunch at Wendy’s because I deserve it!!
12:50pm More laundry.
1:00pm Make a call to insurance company regarding Occupational Therapy referral for Ryland. Trying to get the provider changed because there is a wait list for the current one. Given the information for another provider only to find out that it is wrong.
1:23pm Second call to insurance company regarding referral. Try to get a legit provider. They don’t have any others that are not pediatric. Given a few numbers of pediatric Occupation Therapy providers to see what I can find out as far as getting referred to them.
1:39pm Start calling the numbers I was given. First one will need to call me back after conferring with the resident OT regarding our situation.
1:44pm Call the number I found online for the first provider given in the earlier phone call to insurance company. Turns out to also be the wrong number. They obviously haven’t updated their website in a while.
1:45pm Get a call from Ryland’s teacher letting me know that Ry is ready to come home. *sigh*
1:50pm Leave early to pick up Ry from school for ABA therapy. Normally I leave around 2:15pm but because Ry had thrown a fit in class to leave, I pick him up early. Remember laundry but don’t have time right now.
2:05pm Have to wait for another school employee to bring Ry up to the office because the teacher cannot leave the classroom.
2:31pm Arrive home with Ryland. He immediately takes off his pants and pull up. Put them back on him.
2:35pm Get Ry a drink.
2:37pm Make Ry put his pants back on.
2:44pm Get Ry another drink and again make him put his pull up and pants back on.
2:50pm Ry is finally settled on his bed watching YouTube videos on his kindle.
2:58pm Ryland’s RBT for in-home ABA arrives.
3:11pm The pants are off again.
3:15pm Ry is happy and content in the living room with RBT watching a lyric video of ‘All Star’ by Smashmouth on repeat.
3:23pm ABA really gets started.
3:54pm Ry tries eating the cat toys. This is not part of ABA therapy.
4:21pm We are dancing to the music from Just Helping My Dad again I’m assuming in celebration of getting his pants back on.
5:07pm While trying to get Ry to brush his teeth, he snorts at me and my attempts. An actual laugh snort! At least he’s keeping his pants on now.
6:02pm RBT goes home. Ry is in his room on his kindle and I get to start dinner.
6:37pm Aidan gets home and brings in the mail which includes a letter from Disability Determination Services informing us of an appointment for a Speech Evaluation for Ry in February.
7:15pm Ry emerges from his room completely naked except for his socks playing the song ‘Who Let the Dogs Out’ on his kindle.
8:00pm Ry has fallen asleep. I watch a movie on Netflix just because I can.
8:42pm Remember the laundry again but decide it can wait until tomorrow.
10:03pm Bedtime for mom. Paix will take care of Ry until 2-3am so I can get some real sleep.
11:00-ishpm Finally fall asleep.
12:58am Ry wanders into my room, waking me up for a drink and his kindle. Paix is in the shower.
1:07am Back to bed. Tomorrow is a new day!